I've put this off for too long. I'm really not sure if this is Lyme related but I need to find out. I live in East Lyme, have been bitten by a tick (not recently) and have never noticed a lyme rash.
My ELISA test returned equivocal with neg. Western Blot while on antibiotics at the time. I haven't seen the actual results and was only given the neg. over the phone.
(Edit: now have the actual results and had abnormal IGG bands 41 and 66 if that's even worth mentioning)
I've been sick for at least 2 and a half months now and after the 3rd recurrence of swollen axillary lymph nodes, I'm no longer accepting "it's just anxiety" as an answer.
My recent bout of illness started out with strange sensations in my head that seemed like antidepressant withdrawal "brain shivers" followed by extreme fatigue, depression, anxiety, swollen lymph nodes, pain all over (mostly shoulder, neck, knees, chest/ribs and back), pressure in my head (but little to no congestion), blurred vision, sensitivity to light and sound, headache, tingling in arms, dizziness, confusion, etc. I could go on for days. The symptoms seem to change in type and severity and are driving me absolutely insane.
I have seen 3 doctors so far and all have written it off as anxiety and prescribed benzos and antidepressants which have done very little to ease my suffering but at least now I can get to sleep at night. CT scan, thyroid, and lyme tests all came back normal.
I'm currently unemployed and uninsured so finding medical treatment has been a real burden both financially and emotionally. I just need to get whatever this is out of me. I'm not sure how much longer I can take it. Any real diagnosis would be a godsend for me. This is like fighting a ghost.
I guess I also just want to know if I'm wasting my time pursuing a possible lyme diagnosis. I have several friends and family members who currently have or have had lyme and/or chronic lyme and it just seems like the chance that I could have it as well is slim.
If anyone has actually read this far in my post (I know I ramble) and you have any suggestions as to other options to pursue, please respond or shoot me a pm. I am really desperate for answers and am not getting them from the doctors I am supposed to be able to trust.
[ 11-12-2009, 08:46 AM: Message edited by: nobodypanic ]
Posted by Abxnomore (Member # 18936) on :
Welcome to Lymenet
I have sent you everything you need to help you find a good Lyme literate medical doctor (LLMD) and info to learn more about this illness.
Please join in our discussion in medical, where we have many members ready to share their experience and knowledge about this illness with you.
Posted by bettyg (Member # 6147) on :
welcome nobody panic,
check your profile above for my pm to you of conn. llmds.
my welcome letter is in my signature line below...hugs. Posted by nobodypanic (Member # 23126) on :
Thank you to everyone who has sent me pms.
Still not sure if it could be Lyme but it is worth looking into still. Hoping to find some answers soon.
![[hi]](graemlins/hi.gif)
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