New to the Board! I am here for my husband. He was bitten by a tick abour 2 years ago (at that time he was 35).
We did not find the tick, but noticed a rash on his upper arm. Upon watching it closely for 24 hours it grew in size. He did go to is PCP who said if it grew larger then to return.
The next day it indeed grew in size. His PCP initially put him on a few rounds of Antiobiotics for 2 weeks. During those 2 weeks I've never seen my husband in so much pain. He is not a man that complains a lot. However, just lying on the sofa seemed to cause him muscle pain. It was unbearble to witness.
After the round of Antibiotics his Dr. stated he did not test positive for Lyme disease and we thought it was over.
Well move forward about 1.5 years. My husband has continued to battle with muscle fatige from the waste down, muscle spasams, joint ache/pain, Stiff limbs and lower back. We've seen Chiropractic doctors, a neurological specialist... we've had a ton of tests run on him.
He has had so much blood work done and still..we have no answers. They thought it could be MS, Lupus,rheumatoid arthritis. But they believe he hasn't tested positive for any of this.
Although the Doctors agree that he is loosing mobility in his joints and muscles; they can't seem to figure out why.
He has been told several times he does not test positive for Lyme Disease. My husband is currently living with the symptoms and trying to not let it ruin his day to day life.
However, it isn't getting better and I am concerned it will worsen over time. I am not sure who to turn to or what we can do. My husband is 37 and walks and feels more like a 60 year old. His joints hurt and his legs get fatigued so easily.
I am certain he has some remaining infection from the initial tick bie 2 years ago. I just don't know who to turn to for medical help.
I also believe my husband has given up on finding a solution. He is just "living" with it and that is no way to function. And I am terrified it will worsen if we do not find someone to work with. Considering his fatigue is increasing.
Any help or advice is much appreciated.
[ 11-20-2009, 05:24 PM: Message edited by: Flo ]
Posted by Abxnomore (Member # 18936) on :
Welcome to Lymenet Flo
I have sent you everything you need to help you find a good Lyme literate medical doctor (LLMD) and info to learn more about this illness.
Please join in our discussion in medical, where we have many members ready to share their experience and knowledge about this illness with you.
Posted by Meg (Member # 22) on :
Sending Information and referrals
Posted by Troup Brazelton (Member # 6297) on :
Get the results of the test he has taken and post them on medical board. I would be willing to bet the doctors made a mistake in reading the results.
Posted by Bugg (Member # 8095) on :
Flo-
so sorry about your husband...Have you contacted this group yet:
Also, there is lyme disease in the South. Don't let a physician tell you otherwise. I live in Tennessee and we face the SAME uphill battle regarding education.
The link below will show you the number of reported lyme cases in Georgia. Also, just fyi, for 2007 and 2008 respectively there were 31 cases each year in Tennessee. Don't let someone tell you that you cannot contract lyme in Georgia.
Your husbands symptoms sound very similar to mine. I will PM you the name of a the LLMD who I see. After five years I AM MUCH BETTER.
It sounds like he might have inflammation in the brain or spine. Has he been diagnosed with myelopathy or have any SPECT scans been run to see if he has hypoperfusion?
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