Hi. I'm editing this thread to reflect wisdom gained since posting last month:
Had hellish days & nights last month with new pain & nausea.
Urgent CT scan found: gastric dilation and very distended stomach. This morning, my stomach looks odd and tight...
Worked to stay out of ER (where Lyme sufferers are routinely tortured by light, sound, and the boldly ignorant). Low-dose opiate required for 1.5 days to combat terrible pain.
Saw a gastroenterologist who knew NOTHING, but insisted i take free samples of a proton pump inhibitor that had caused months of misery (at his ducky hands) in the recent past.
fyi, proton pump inhibitors increase the risk of C. difficile infections!
ONLY an LLMD can get a patient into remission from chronic Lyme disease!
Keep your gut healthy & happy with coconut kefir daily, probiotic capsules, and soothing aloe vera juice.
Spend your time & energy & $$$ on LLMD's only. Others are waste now!
[ 06-25-2010, 11:53 PM: Message edited by: Remember to Smile ]
Posted by Siciliano (Member # 15920) on :
PM sent.
Posted by Gog (Member # 25129) on :
Hello
I too am looking for a LL Gastroenterologist. I'm looking in Montgomery County, MD or DC area. Needs to be accessible by public transportation...i can no longer drive.
I have Crohns disease and chronic lyme and have yet to find a GI doc that "believes" in chronic lyme so i'm having problems getting consistent treatment for my Crohns.
I have seen 3 GI docs in the area and none have worked out due to the issue of "chronic lyme disease" in some way...
current tx for lyme and babs:
IV ceftriaxone Diflucan (for the moment replacing Flagyl due to bad case of thrush) Qualaquin (quinine) IV clindamycin (i know i know...clindamycin + crohns...eek)
was taking Apriso for Crohns... rx has run out and don't have a GI doc...
Thanks!
Posted by kimp (Member # 19339) on :
sent some info to Gog. Remember to Smile - your mailbox is full.
Posted by Remember to Smile (Member # 25481) on :
Dear Gog, I am just a Lyme patient, not a healthcare provider, but i'd like to share mho.
All you need is a LLMD.
There are NO LL or Lyme-aware gastroenterologists in our populated region. Not one.
I urge you to conserve your energy & $$$ and focus on one LLMD who has experience getting Lyme patients into remission.
I'm under the impression that a gastro strain of Bartonella henselae (causal agent of "relapsing fever" disease) may be the culprit causing your Chron's disease symptoms.