LymeNet Flash: Dr. H in WI

This is topic Dr. H in WI in forum Seeking a Doctor at LymeNet Flash.

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Posted by luke'smom (Member # 26341) on :

Does anyone know what protocol Dr. H uses? Also, is there a certain list of questions I should ask at a visit? Thanks!

[ 06-26-2010, 12:03 PM: Message edited by: Lymetoo ]

Posted by dmc (Member # 5102) on :

Hi & welcome,

Sorry to bombard you with "don'ts" but...

Please delete the dr's name. We don't post names, just initials. Many doctors get persecuted for treating lyme.

Also, many docs do not like their names & info discuss on the world wide web.

We also Do Not post protocals.

Each patient is different requiring different meds.

People will send you PMs (private messages)with that info.

For general info if you go above to Anna Lee's post "Quick Links to Popular Topics"
you may find helpful info too.

Posted by dmc (Member # 5102) on :

Also there is a "search" mechanism above so you can search a topic & see the past discussions.

The "search" is above under the "post a poll".

Posted by onbam (Member # 23758) on :

Please delete this post ASAP. It isn't safe to post doctor names.

Posted by luke'smom (Member # 26341) on :

I'm so sorry. I'm new here. How do I delete it.

Posted by TF (Member # 14183) on :

Click on the paper and pencil icon across from the date at the top of your post.

THen, you can delete the doctor's name and city and just call him Dr. H. in WI.

People will answer your question privately.

Thanks!

Posted by Lymetoo (Member # 743) on :

I'm new at moderating. For some reason, my explanation did not post.

*** Please share only the dr's initial and State... also share protocols by PM only. Thanks!! ***

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Posted by Keebler (Member # 12673) on :

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To find out if this is the right doctor for you/your son:

* You should also ask at your local lyme support group

You are looking for an ILADS-educated LLMD (Lyme Literate MD). ILADS details below. Some doctors will say they treat lyme but are not as educated as needed. Treatment paths vary but it's vital they've read ILADS' research, etc. for the science of lyme.

* You can call that doctor's office and ASK the office manager a few questions.

I see you are looking for a child. I don't know if this is a new, recent case or a chronic one. But, many regular doctors don't believe in chronic lyme. Many treat only if they see a rash and then for a short time only. But not every one gets the rash.

Testing is not great either and many labs don't do the right test or even use proper procedures for the tests they do perform.

You may know that already but, if not, it's important to know that going in, even if this is a brand new case.

Questions for the doctor's office mgr.

1) Do they evaluate for lyme disease? If your son does not have a rash, ask them if that's necessary? Ask what kind of test would be done. If treatment is needed, Ask what that would be.

Would the tests need to be CDC positive?

Ask if they follow the IDSA Guidelines? Pause, let them answer.

2) Then ask if they are familiar with ILADS ( eye- lads).

3) if they ASSESS and treat chronic lyme. Wait for answer.

3) Then ask if the ASSESS for other tick-borne infections.

4) Ask how long your child might be on treatment, if he has lyme.

5) Ask if they treat the "cyst" form of lyme, too?

I see that you have posted in "Seeking a Doctor" forum.

=================

Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates

==================

www.ilads.org

ILADS - International Lyme and Associated Diseases Society

==================

www.igenex.com

IGENEX - testing for tick-borne infections

====================

www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

=====================

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/42077?

======================

This explains WHY you need an LLMD - ILADS-educated doctor.

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.

========================

http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by LORRAINE JOHNSON, JD (revised 2005)

=========================

Check your library for this, or it can be ordered:

http://tinyurl.com/5crsjv

Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

============================

http://www.underourskin.com

Documentary: UNDER OUR SKIN

DVD is $35. and worth every penny. It explains a lot.

=========================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

========================

http://www.thehumansideoflyme.net/viewarticle.php?aid=65&PHPSESSID=25cbf914e65cc1938246848b512f1cf3

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

==========================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

========================

You asked: "Is there a certain list of questions I should ask at a visit?"

When you know that you've found a doctor who is ILADS-educated:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Posted by Keebler (Member # 12673) on :

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http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

======================

http://www.lymeinducedautism.com/images/Lymewhat_is_it_part_3,_LIA.pdf

LYME DISEASE Considerations in Diagnosis and Management

June 26, 2008 Lyme-Autism Connection Conference

125 pages - Powerpoint presentation

--------------

By the same author as above, Chapter 1 from the book "Insights Into Lyme Disease Treatment"

http://www.lymebook.com/steven-harris

---------------

http://www.amazon.com/Insights-Into-Lyme-Disease-Treatment/dp/0982513801/ref=sr_1_1?ie=UTF8&s=books&qid=1272566632&sr=1-1

Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies

Connie Strasheim (Author), Maureen Mcshane M.D. (Foreword), Thirteen Lyme-Literate Doctors (Contributor)
-