I was finally able to get my mother into a LLMD in Waupaca WI, however, he didn't give much guidance as to nutrition/vitamin/herbal guidelines along with her antibiotics. He placed her on Clarithromycin 500mg twice a day and vit B12 injections every other week. He also suggest Vit D 4000 units daily, B complex, Probiotic, adrenal/thyroid protectants, and possibly milk thistle. I am reading Dr. B's guidelines and there seems to be alot missing in her treatment... Can anyone recommend a LL nutritionist near Eau Claire Wi to help??
Posted by Remember to Smile (Member # 25481) on :
Hi, Looking. I cannot suggest a Lyme-friendly or Lyme-aware nutritionist in Wisconsin, but i can share a bit of info.
I'm sorry your mother is challenged with Lyme disease now, but it is a great blessing that you are assisting her!
Very wise to consult the ILADS' 37-pg. Treatment Guidelines by Dr. J. Burrascano. (I put my copy of his Oct 2008 16th Edition in a 3-hole binder and added dividers. Makes it easier for me to make notes and refer back again & again. And since Dr. Burrascano now teaches about Lyme disease throughout the USA & in other countries, we can mention his name in our posts.)
I'm not a healthcare professional and cannot comment on Clarithromycin, but definitely, YES to milk thistle for liver support! Supplemental Vit D3 and injections of Vit B-12 are necessary for many Lyme patients seeking remission.
Probiotics are vital, as is a Candida-control diet (Gluten-free, no wheat, no yeast, no sugar, no simple carbs, no fruit). Seems there's consensus that Florastor is among the best (I take it). It's also important to rotate among several probiotics to keep the harmful parasites guessing. Selecting probiotics that are stable at room temp makes it easier to remember dosing. (Probiotics in fridge can lead to out-of-sight, out of mind).
Except for kefir! I drink "SO Delicious Original Coconut Milk Kefir" w/ only 3 gr sugar/serving (much less than other types kefir). If that doesn't suit your mother, maybe blend the Orginal with their Strawberry Coconut Milk Kefir for a sweeter taste. Everyone should drink ~3 oz kefir/day (That's less than a "serving size" on the bottles.)
The following presentation is from a Lyme support group meeting in Pennsylvania in Feb 2010. You may wish to compare this info with other ideas you receive on LymeNet and the sound recommendations of Dr. B (respected worldwide):
I take the Terry Naturally Cucurmin Mr. Briggs suggests. It's been excellent for diminishing my Lyme arthritis pain.
Please keep in mind that the treatment of Lyme disease & co-infections is a still-developing science and each unique patient is impacted by a different set of circumstances & pathogens. Any ideas you have about your mother's treatment should be shared with her LLMD before making changes. Taking a few new steps each month can be safer than attempting to re-make a lifetime in just a couple months.
All best wishes, Smile
Posted by Dawn in VA (Member # 9693) on :
Wondering why your mom's LLMD only has her on Clarithromycin instead of a triple combo (macrolide + cephalasporin + cyst-buster)... Maybe he/she's trying to figure out how sensitive (how hard she may herx) to ABX? You might want to pose that question to her doc in addition to any nutritional questions you have.
Posted by Siciliano (Member # 15920) on :
I sent you a pm.
Posted by Looking for WI Lymes MD (Member # 25779) on :
Thank you to everyone. I have a phone call into a LLND, he is out of the office until 7/12. I went out and bought exactly what Dr. B encouraged. Multi-vite, D3, Bcomplex, Magnesium, Calcium, Vit C, Omega 3, Probiotics, Milk Thistle, CQ-10 (I think that's what it's called), Glucosamine... I will start her on this stuff and her LLND can change things when and if we meet. Her LLMD also put her on B12 injections q2weeks, forgot to mention that, oops. I called his office questioning the single antibiotic of Clindamycin, his receptionist said that he often starts off slow in the first month to see if his pt's can handle oral meds. He is contemplating IV therapy too. We will see, keep my mom in your thoughts
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