LymeNet Flash: Seeking LLMD in New York

This is topic Seeking LLMD in New York in forum Seeking a Doctor at LymeNet Flash.

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Posted by troymack (Member # 26992) on :

I am a 36 year old mother of three diagnosed with CNS Lyme in Dec '09. I had my third child in July of '09 and slept in the living room with her - where my dog also sleeps. Had a strange looking bulls-eye like rash on my inner thigh two days after coming home from the hospital which was misdiagnosed as ringworm.

Needless to say, hives appeared shortly thereafter and two courses of steroids later I began to have the symptoms of CNS lyme.

I had a PICC line inserted in Dec '09 - 30 days of Roceferin (sp?)... prior to that 2 x doxy and was bit again in April of '10 - more doxy.

Symptoms are getting worse, being sent to neuro-opth, MRI of brain is clear as of Nov of '09 - might be thinking MS... Looking for some help.

Headaches, vertigo, numbness, tingling, joint pain, vision issues, memory issues, etc... are continuing.

Thank you for this website. I feel better knowing someone gets it!
[bonk]

Posted by Keebler (Member # 12673) on :

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As you had the classic bulls eye, a lyme literate MD is in order. MS usually misdiagnosed with lyme or similar infection being the underlying cause. Proper treatment often clears symptoms but 30 days is not long enough.

I don't usually work with lists here but see that there has been an explosion of requests and the person(s) doing this are probably very overwhelmed.

Until someone sends you a PM with a list, you might find your area lyme support group and start there. Good luck.

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http://www.lymenet.org/SupportGroups/UnitedStates/

Find your area Lyme Support Group
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Posted by Siciliano (Member # 15920) on :

Thank you Keebler! [kiss]

Hi, troymack and Welcome! [hi]

We are happy to have you. I sent you a private message (pm), click on the flashing envelope. [Smile]

Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
[Smile]

Posted by Nancy2 (Member # 95) on :

PM Sent!

Posted by MidnightMoon (Member # 26717) on :

Hi Troymack, sorry for what youre going through..sending pm with great neurologist whose specialty is ms. but very experienced with cns lyme also. hope youre on meds in the meanwhile., be well