LymeNet Flash: Seeking doctor in PA

This is topic Seeking doctor in PA in forum Seeking a Doctor at LymeNet Flash.

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Posted by blownelk (Member # 27078) on :

I am 26 and have had Lyme symptoms for 9 months now. It started with a fever and chills. Then my knees started hurting.

The doctor thought I had Parvovirus and prescribed Prednisone. This did not help at all. Everyone kept telling me it would get better with time and to get lots of rest.

My condition has only gotten worse. Now my knees, ankles, toes, elbows, wrists and fingers all hurt and they crack and pop a lot.

I have been tested for Lyme disease twice and it came back negative both times. I finally convinced my doctor to prescribe an antibiotic for Lyme just incase. It seems to have helped a little, but I still have a lot of pain.

I have also seen a rheumatologist who can only tell me that I do not have arthritis yet, but that something is wrong with me.

I would really like to find a Lyme specialist in the Lancaster, PA area that can tell me if I actually have Lyme and can also help me treat it effectively. Thank you for your help!

Posted by Keebler (Member # 12673) on :

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Blownek,

Prednisone usually makes lyme (or other chronic stealth infections) MUCH worse. Sorry.

Most labs don't do the right tests and also don't even do what tests they do perform correctly.

Glad your rheumatologist knows something is wrong. Most just say "fibromyalgia" when they don't know.

I don't usually work with lists here but see that there has been an explosion of requests and the person(s) doing this are probably very overwhelmed.

Until someone sends you a PM with a list, you might find your area lyme support group and start there. Good luck.

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http://www.lymenet.org/SupportGroups/UnitedStates/

Find your area Lyme Support Group

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www.lymepa.org

The Lyme Disease Association of Southeastern PA

See the Green Book in the lower left hand menu.

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www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

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www.ilads.org

ILADS - be sure to read all the articles in "Articles and Presentions" Get the DVDs of ILADS of past seminars.

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www.igenex.com

IGENEX - testing for Tick-Borne Infections

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http://www.lymediseaseassociation.org/

Lyme Disease ASSOCIATION

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http://cassia.org/checklist.htm

Symptom checklist for lyme.

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http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

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http://www.lymeinfo.net/lymefiles.html

LYME DISEASE MEDICAL LITERATURE SUMMARIES

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http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by Lorraine Johnson, JD (revised 2005)

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This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"
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Posted by Keebler (Member # 12673) on :

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http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/25084

about Steroids (Prednisone is a steroid)

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In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link

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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Posted by Siciliano (Member # 15920) on :

Hi, blownelk and Welcome! [hi]

We are happy to have you. I sent you a private message (pm), click on the flashing envelope. [Smile]

Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
[Smile]

Posted by blownelk (Member # 27078) on :

Thank you all for the information! I feel like there may be hope after all.