I need a lyme literate neuro in CT and someone suggested this dr. Has anyone tried him?
Posted by amkdiaries (Member # 7035) on :
Yes - after spending three hours with him he said he didn't know where my pain was coming from but that was two years ago. Maybe he is different now.
Posted by 2young2die (Member # 25434) on :
Eek, he charges $950 for the first session and $300 for follow-ups. That's alot of money for "I don't know".
Posted by dmc (Member # 5102) on :
gee, I would be glad for the honesty & not get B.S.
Go figure...we get mad when the truth is said but accept wrong hooey from others.
Posted by seibertneurolyme (Member # 6416) on :
In my opinion this is probably one of the top LLMD neuros in the U.S. He trained under Dr B. I do feel he knows lyme, but is not as current on the coinfections. He pretty much treats by the book (Dr B guidelines) for coinfections -- Levaquin and Mepron etc. Doesn't use the newer drugs such as Factive and Coartem.
He does spend whatever time is needed with new patients. Hubby had a 5 hour new patient appointment. He had 10 years of history and the doc kept asking for more details.
The doc likes to do lots of testing -- but due to hubby's long illness we stated that we could only afford tests from LabCorp or Quest which would be covered as in-network for insurance. The doc was agreeable.
The other issue with this doc is the office staff. He does not have a nurse -- just several part time administrative staff and you never know who is doing what. Followup questions sem to get lost in the shuffle at least some of the time.
So far hubby is feeling the best he has in 10 years. The combo of IV meds from this doc and his regular LLMD who is continuing to treat his coinfections seems to be finally making a real difference. Not sure about other patients, but for us this doc agreed with hubby and I that moderate treatment rather than aggressive treatment was the way to go.
Hubby has been to probably 25 neuros -- at least 2 others were supposedly LLMD neuros -- this doc was by far the best.
Bea Seibert
Posted by 2young2die (Member # 25434) on :
Thanks Bea. Does your hubby have ALS? I do.
Posted by tonysgirl (Member # 11202) on :
I called his office about 2 months ago and the very, know-it-all secretary told me he was moving out to California. Is he still here?