I've written before about one of my German cousins who has been very sick for a year and finally found an LLMD in Germany to help her.
She called me today with bad news.
She had been seeing an ILADS LLMD at the Borreliose Centrum Blankenburg. She had been to him twice (the first time was there a few weeks) and now he was guiding her family doctor by phone for the rest of her treatment. (Now there's a novel idea, huh!)
The first time she had gone to him, maybe 3 months ago, she had tested positive for lyme, erlichia, and CPN. He thought she might also have Bart even though she didn't test positive for it.
He has had her on 600mg Zith 3 days a week, saying it stays in your system so you don't have to take it daily. She's also on Artemesia Annua Intense 1600mg daily and quite a few immune boosters.
She just found out the Blankenburg Klinik has closed (it had recently opened so who knows what's going on there?) and now she's wondering what to do. Her LLMD told her to continue on these meds and she will get all better.
Her family doctor is very willing to keep treating her (writing scrips) but doesn't know how to treat by himself if treatment must change.
These are her symptoms - exhaustion, muscle pain knee to ankle and hands, nausea, trouble breathing w/ pain in right lung as if something's in there, dizzy - only a little but a few times every day, fuzzy brain that had gotten better but is now fuzzy again, nerves from elbow to face feel like when you hit your funny bone.
All these symptoms come and go, are off and on and overall she is much better just in this short time. Before treatment, she could only lie on the sofa and now she is taking care of her family and toddler again.
So, my question is, do any of you think that these meds will get her all better. Zith and Art? I don't, but what do I know?
Any thoughts and ideas would be appreciated.
[ 01-03-2011, 10:39 PM: Message edited by: 17hens ]
Posted by 17hens (Member # 23747) on :
up?
Posted by karenl (Member # 17753) on :
Is she aware of the European lyme group, I also think the cpn group is international, Dr. K sometimes works in London, Dr. Woitzel, she can post in cpnhelp.org I think there are some Germans with lyme. Has she done the parasite cleanse?
Posted by Abxnomore (Member # 18936) on :
Pull up the profile of Guido. He is from Germany and IM him. He should be able to offer you some advice.
If you don't hear from him, let me know and I will email him and tell him to check in on lymenet, that his help is needed.
I'll check this post periodically.
P.S. I sent Guido an email with the link to this post asking him if he can help out.
Posted by 17hens (Member # 23747) on :
Thank you, karen!
The European lyme group meaning the Clinic in Augsburg? She says she is hours away from there which is why she went to the new branch that opened in Blankenburg.
London is too far too. And Woitzel wants you to stay for 2-3 weeks. The problem is that her husband travels ALOT for his job and she has an elementary age child and a baby.
I know it's crazy when someone asks for help and then tells you all the reasons why they can't use the help you offer them, but that's where she's at.
No, she hasn't done a parasite cleanse that I know of. Good thought, I'll mention that to her.
And I'll certainly email her my list of German LLMDs if I can find it.
But I'm basically trying to find out if anyone thinks the protocol she is on will be enough.
Posted by 17hens (Member # 23747) on :
Got it, Abxnomore! Will do! Thanks!
Posted by Guido (Member # 22822) on :
quote:Originally posted by 17hens: .... She had been to him twice (the first time was there a few weeks) and now he was guiding her family doctor by phone for the rest of her treatment. (Now there's a novel idea, huh!) .... She just found out the Blankenburg Klinik has closed (it had recently opened so who knows what's going on there?) and now she's wondering what to do. Her LLMD told her to continue on these meds and she will get all better. ....
Don't you do telephone treatment in th US?? We do it all the time.
But the trouble is: their names may not be made public, because they are all afraid of too many patients. So we have about 150 Doctors in the Borreliose-Gesellschaft, but there is no official list. You will have to ask in the forum and then you will receive a private message.
Best regards, Guido
Posted by Guido (Member # 22822) on :
quote:Originally posted by 17hens: .... But I'm basically trying to find out if anyone thinks the protocol she is on will be enough. ....
That is definitely a question nobody can answer! Fact is that every single one of our German LLMDs has his/her very unique "style". I guess, it is the same with your LLMDs in the US .... ?
Sometimes it takes 2 or 3 different LLMDs to really gain an improvement.
Regards, Guido
Posted by 17hens (Member # 23747) on :
Thanks Guido! I'll give her all your information so she can get started.
Thanks for the help, everyone! Much appreciated!!
Posted by Abxnomore (Member # 18936) on :
Thanks Guido, too! Posted by Guido (Member # 22822) on :
No problem. You're very welcome! Posted by sixgoofykids (Member # 11141) on :
I can give you the contact information for my doctor in Pforzheim who treated me with the Bionic 880 if she would be interested in that treatment. After the initial 3 week treatment, she would only need to go monthly for a visit. So it would only be that long once.
My husband travels, too. We just had to arrange for me to spend the three weeks there. It was worth the sacrifice because I came home 50% better and continued to improve from there.
I have heard there is an LLMD in Pforzheim, too, but I don't know any of his information, not even his name.
Posted by sixgoofykids (Member # 11141) on :
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