Any sugguestions would be great....
Posted by Joyce Newho (Member # 30296) on :
Hi! I am also seeking a Lyme disease specialist in the Kansas City area. My mother has what we all think is Lyme disease. She remembers the tick bite last May, and had the bulls eye around it. She came down with symptoms 3 weeks ago, and has progressively gotten worse. She has pain all over her body, every joint, and a raw red blister like rash over her hands and face, swollen lymph nodes, etc. She lives in the Blue Springs/Grain Valley area and they have a large deer population around them, so there are deer ticks in her yard. If you find a specialist that you like, please let me know. I'm looking for one myself to refer her to. Her bloodwork has not come back yet for the Lyme disease test, but we feel confident that she has it. The ER doctor put her on Doxycycline, 100 mg. twice daily.
Posted by Lymetoo (Member # 743) on :
information sent to each person
Posted by littlebit27 (Member # 24477) on :
Sending you a both PMs
Posted by lakemom11 (Member # 30334) on :
Joyce, Hi, I'm from the Kansas city area also.. Lotawana, did you find somewhere around there? I'm living in florida right now, but I would go back to KC area if there is a good doc.. Hope your mom is hanging in there!
Cathy
Posted by Lymetoo (Member # 743) on :
PM sent to lakemom
Posted by t9im (Member # 25489) on :
Joyce:
If the test comes back negative it doesn't mean one doesn't have Lyme (or co infections).
I suggest reading Dr. B's Advanced Topic in Lyme Disease and TG's Complexities of Lyme Disease.
Posted by ryan419 (Member # 30396) on :
I am also seeking a Lyme disease specialist. I am in Lee's Summit, but anywhere near Kansas City would be great. If anyone has any information on a doctor I would greatly appreciate it.
Posted by sickntired19 (Member # 21949) on :
May I have the info too, please?
thanks!
Posted by Lymetoo (Member # 743) on :
Info sent to ryan and sick..
Posted by NanaB (Member # 26227) on :
I am seeing the most famous of LLMD's in Kansas Cityk but after being on Ceftin for nearly a year, no results at all and he still wants me to stay on it.
My dd was on Ceftin but had to change to Azithromycin about 2-3 months ago, but neither one has given her any relief. She has continued to get worse, even from where she was before we started seeing him.
Can anyone PM me with the name of the other LLMD in Kansas City? I'd sure like another opinion.
Posted by Lymetoo (Member # 743) on :
Don't "go there." I'll PM you.
Posted by sickofsick (Member # 29258) on :
I know someone seeing Dr. J in Wichita. Not sure how far away that is for you. She is very happy with him and was very ill. Let me know if you want more info
