I was diagnosed with Crohn's about 2 years ago. They put me on Remicade for the Crohns and Psoriasis, about 2 1/2 months ago my joints in my knees and shoulders started hurting me really bad. I talked to a friend of mine in Michigan and was telling him about my symptoms and he told me about his brother in law having Lyme and that my symptoms were the same. In the meantime I went to the Mayo Clinic and seen a GI dr, told him that I would like to be tested for Lyme Diesease. He looked at my medical records and assured me that I had Crohn's and that I had a reaction to the Remicade, then put me on Prednisone. I returned home 2 weeks ago and went to my dermotoligist, he ran a blood test and I begged him to do the Lyme test. He told me there is no way I had LD but he ran the test as I asked. He called me yesterday and informed me I had tested positive for LD.
Finally I had found someone to listen to me. Now I need to find a good LLMD in the Indy area.
Posted by Lymetoo (Member # 743) on :
Another travesty. Happens all the time all over America. Mayo is really really bad about NOT diagnosing Lyme.
Even if they did dx it, they would not treat it. It's a huge political situation.
It's also amazing that your test came back positive after being on immunosuppressant drugs and even worse... on prednisone!!
Steroids are contraindicated in Lyme disease... so ask your dr to help you taper off of them... you MUST have his help.
I sent you info on IN doctors... Feel free to repost the above (your story) in Medical Questions.