I have been ill for ten years and disabled for four. I used to be a teacher and have an M.Ed. in science education.
When I became disabled I was tested for Lyme's via the Western Blot (inconclusive) and iGeneX.
I have a diagnosis of ME/CFS and an article was run on me in our local paper in recognition of ME/CFS Awareness Day (May 12.) May IS ME/CFS Awareness Month.
Anyways, I was contacted by a woman in Chicago and then her Lyme literate friends in the West Michigan area. It appears my iGeneX test may have been read incorrectly, <sigh> (I'm really a LOT angrier than I sound on the screen.)
I'm used to being dismissed by doctors (took me 23 to get an ME/CFS diagnosis and years of fighting to get disability) but if I DO have Lyme's or a co-infection I'd rather not go through THAT again.
I will have a copy of my iGeneX lab results in my cramped little hands on Friday and would like to take it to a Lyme Literate doctor.
I just finished watching "Under Our Skin" and recognize most of the doctors featured in the film are either not available or on the east coast. Does ANYONE know of anyone in Michigan???
Thanks a million and keep fighting the good fight.
Neuro-immune diseases are on the cusp of busting down the walls in this country!!!!!!
Posted by cheffer (Member # 28737) on :