why is "LYME" the dirtiest 4 letter word in the medical world???? i need a doctor in New York City who is not afraid to say the "L" word TYVM
Posted by Abxnomore (Member # 18936) on :
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Posted by SeaSickTick (Member # 32919) on :
only two drs in NYC...that is insane and the one recommended isn't even a MD. i have eye and ear issues and need a real MD
Posted by piper (Member # 25946) on :
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Posted by SeaSickTick (Member # 32919) on :
thanks...can't wait to call Dr. C's office on Monday
Posted by piper (Member # 25946) on :
PM Sent
Posted by Abxnomore (Member # 18936) on :
SeaSickTick,
The name I sent you is one of the top practitioners in NYC. He was Dr. Burrascano's PA (read Dr. Burrascano's guidelines....still one of the best) for many years. He has the same credentials and as much knowledge as any M.D. He is real. Not sure your comment was helpful to put him down because he is not an M.D. when he can really help you.
I would recommend him over Dr. C. any day. I've been following Dr. C for years and for many years he did not even test co-infections and I'm not sure if he does now. You will not get a comprehensive integrative approach from Dr. C., which is imperative to getting this illness under control. He will not check heavy metals, candida, hormones, thryoid, use supplements and all the critical things necessary to get you on your way to health. Eye and ear problems are part of this illness....neurological involvement.
I would suggest that you become involved in our medical section and learn about how complex and difficult this illness is to diagnose and treat. It's not only about dispensing Antibiotics but addressing all the bodily systems that this illness has sent out of balance and has affected.
It's also not insane that there are a few LLMD's in NYC. There are not many in general or in the entire country and they are hard to come by. I'm sure that is what brought you here? I sent you an article explaining the controversy and you are facing it right now.
I also suggested you see the documentary "under our skin". With this illness we are our own advocates and we do the research and leg work to get the best treatment we can find. Ask lots of questions and learn. If you can get in to an LLMD in a relatively short period time, question why that is so. The very good ones have long wait lists to get in.
Dr. C is not in NYC either. If you are willing to travel, there are other LLMD's further up state, in fact, one of the best in that area.
Posted by SeaSickTick (Member # 32919) on :
Under Our Skin was on a local PBS channel today. I watched and cried the whole 90 minutes. I have already done my research, I have read everything there is to read on the internet and in book stores. I am an environmental scientist, so I understand the medical terminology. I have read Dr.B's guidelines many times. I was treated with steroids by a know-it-all doctor, and my body reacted violently because we all know that steroids are contraindicated for lyme. I am scared to be diagnosed and even more scared of the treatment. I hate to take an aspirin and can't imagine taking all the meds that Dr. B recommends. I guess what I'm trying to say is that I understand both sides - ILADS and IDSA. In my heart I know that ILADS is right, but my mind keeps telling me Dr. B's treatment plan is too severe. I am seriously considering seeing Dr. Z in NYC for alternative treatment. But first, my main goal is to receive the correct diagnosis.
Seems like everyone who has responded to me has a different opinion which makes it even harder to make a decision on which doctor is right for me.
Sorry if I offended anyone...that was NOT my intent.