I am currently seeing a good TBD specialist (finally!), but he has repeatedly told me to see a PCP for some issues.
How?! who?!
This confuses me terribly, as I cannot distinguish primary/secondary/unrelated problems... major neuro-Bb, babs, bart, mercury, cfs, et al...
The combination of my medical records, current Rx list and crazy self seems to be the trifecta of red flags for any sane PCP willing to even book a consult.
Ideally hoping to find an NP/ND/MD/DO who is willing to treat me along with (or in spite of) what I'm currently on: 2 abx, mepron, plaquenil, abab, al complex, etc....
Seems like it would be more miraculous to find an LL-PCP than a good specialist, which took nearly a year and half a dozen dead end doctors! I don't want to end up with another $300-400+/hr specialist 'acting' as my PCP either.
any advice? I'm too neuro to dissemble my diseased state anymore, which seems like the only way I could get my foot in the door before...
Thanks- Phil
Posted by hopeful4 (Member # 8486) on :
Hi peejay, and welcome to Lymenet. Here are a few suggestions you can consider trying:
Try contacting Bastyr University in Seattle for a recommendation: http://www.bastyr.edu/
Try contacting ILADS (International Lyme and Associated Diseases Society) www.ilads.org You can email them and describe what you are looking for in a PCP. They may be able to offer some recommendations.
Google something like ``holistic doctors, or holistic family medicine'' and names and websites will pop up. By going to the websites and reading about their philosophy and services, this might be helpful.
If you currently see any complementary practitioners, such as massage therapists or acupuncturists, or chiropractors, ask them for a recommendation.
Is there a support group in your area? That's a good way to get a recommendation.
In my own case, I really didn't have a PCP until earlier this year. I hopped around trying to find someone. Now, it seems to be working out OK. There are some doctors out there who are learning about Lyme, and there are doctors who are willing to work with you. Finding them might take some work.