I had a lyme titre recently 6 yrs. post initial diagnosis. For the 6 months, I've been experiencing painful muscle cramping mostly in my lower extremities. The spasms/cramping/charlie horses (whatever you want to call them) come on mostly when I'm at rest.
I am beginning to wonder if the cramping is a manifestation of LD.
Has anyone experienced these symptoms?
I see a rheumatologist who wants to put me on Lyrica which I emphatically say NO! I haven't been able to find anyone knowledgeable LD physician in Rhode Island. I'm looking to find a LD physician in Boston. I have been given a diagnosis of Fibromyalgia by the way.
Posted by Robin123 (Member # 9197) on :
Hi - it would be best if you could repost this with a heading about looking for LLMD in Boston.
Then you can also post in Medical Questions for a medical discussion and folks will respond there.
Posted by Nancy2 (Member # 95) on :
PM Sent!
Posted by LymeGoAway (Member # 25041) on :
Hi Dee Dee,
Sorry to hear that you're going through this.
I had some pretty bad cramping and spasms in my legs before I was treated for Lyme initially. It definitely is a symptom of Lyme.
Until you can get into see an LLMD, you might want to try supplementing with magnesium. That can help a lot with muscle cramps, spasms and charlie horses.
I take the Mag-Tabs recommended by Dr. Burrascano, but others here have had success with other brands--if you search "magnesium" you'll find lots of information on it.
Try to avoid the magnesium oxide that is most commonly found in stores--it is not absorbed by the body very well.
Posted by Ann-OH (Member # 2020) on :
Another help for me is a small glass of tonic water with dinner. It has quinine and I haven't had leg cramps in a very long time since drinking it. Magnesium and potassium are good helps as well. And I take those, but quinine did the trick for me.
Of course, if you are on meds, no gin!
There is a diet version, too.
Ann - OH
Posted by TF (Member # 14183) on :
Fibromyalgia is generally lyme disease if it is more than a very mild case.
Posted by LaurenMiddleTN (Member # 35174) on :
Hi Dee Dee, I had spasms too; arms, legs, fingers, feet, and head. Hot showers before bed and a heated matress pad on my bed seemed to help. I was treated with cymbalta for 2 months while we waited on my testing for lyme. Cymbalta had no effect; first 2 series of test neg., requested a Western Blot test I head about from my aunt,,, after 14 months I finally got my Positive Test result. Since my antibiotics have been in my system 5 weeks now, spasms/cramps have subsided by 80%. Hang in there.
Posted by Lymetoo (Member # 743) on :
Moving to Medical Questions.
DeeDee.. let us know if you need more names of doctors.