Searching for a lyme literate doctor asap in Chester County Pennsylvania or Paoli, or area near by.
Had 3 tests that came out negative, but want to be sure and send to right lab to make sure it's not Lymes. Having lots of symptoms, no answers from Neurologists with lots of tests. Any advice/info would be appreciated.
Posted by Dekrator48 (Member # 18239) on :
Hi and welcome to lymenet!
I sent you a private message with info for PA.
Posted by tonytiger (Member # 33978) on :
Message sent
Posted by Cracker Jack (Member # 34734) on :
PM sent
Posted by richedie (Member # 14689) on :
I live in southeastern PA and haven't found a good one yet.
Posted by kitkat01 (Member # 35485) on :
What types of tests should a llmd do? I had 3 negative lymes tests through cdc and then i had one done by llmd through igenix and he said it was positive. I've started antibiotics oral, but i feel horrible. Im worndering if lymes is what i have and i'm feeling so discouraged with no one giving me any diagnosis. Right now my bladder is very tender and my stomach feels like it's in knots..also exhausted and weak. I want to ask my llmd to do more tests to defintely show that it's lymes...what should i ask him about? It's all so confusing!
Posted by Dekrator48 (Member # 18239) on :
Hi kitkat01,
Most people do feel worse before they feel better.
You are probably herxing from the die off of bacteria.
I think it would be helpful to you if you posted your questions on the Medical Questions Board so everyone will know how to help you.
People with chronic lyme do not feel better in a matter of weeks or even months.....think it terms of a couple years or more.
Have you been reading ILADS info to learn about chronic Lyme disease?
Have you had some coinfection testing? (Babesia, Bartonella, Ehrlichia, RMSF, etc)
Please be patient....it takes time. I have been treating for 3 years and 2 months.