LymeNet Flash: Looking for Dr. to diagnose CFS/FM and/or post-lyme

This is topic Looking for Dr. to diagnose CFS/FM and/or post-lyme - Boston/Central MA in forum Seeking a Doctor at LymeNet Flash.

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Posted by racer (Member # 30438) on :

This may be controversial - but I'm looking for a CFS/fibro diagnosis.

I've been in Lyme treatment for 2 years (orals, babesia, IV abx, IVIG). My doc went out sick so no more treatment. I am not sure more Lyme treatment would help me at this point.

I am on disability and LTD insurance co is being very obnoxious - is pushing hard to get diagnosis (vs. symptoms, which I have a lot of).

I am looking for a doctor to diagnose CFS/Fibro, since at this point I have a better shot at that than Lyme or post-lyme (for their purposes).

Any rheumatologist recommendations in Central Mass/Boston area?

thx,
racer

p.s. comments/advice also appreciated [Smile]

Posted by Lymetoo (Member # 743) on :

Disability claims are based on what you are able/not able to do.. not on what your diagnosis is.

I sent info to you. I don't have any rheumatologists on my MA list.

Disability info:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/23463

Posted by bcb1200 (Member # 25745) on :

If you saw Dr. R in Mass I'm not surprised you aren't better.

There are much better LLMD's in CT and NY. Why did you go to Dr. R?