This is topic Looking for LLMD in South Florida in forum Seeking a Doctor at LymeNet Flash.


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Posted by yellow01 (Member # 40519) on :
 
Hi Everyone, I'm new to this site.

LONGGGGGGG story short, I've been dealing with A LOT of symptoms over the past 2.5 years.... It all started after I came home from GA in August 2010 (after playing in the woods) and got sick (thinking it was just bronchitis)...The "bronchitis" never went away.

Since then I've had problems with:
-EXTREME fatigue
-weakness/numbness in my legs and hands
-burning feeling in my leg
-hands hurt like arthritis
-bad headaches
-HORRIBLE concentration
-lethargic
-foggy feeling
-dizzy spells
-nerve issues
-stiff neck
-can't spit out words

I've had every test done and they all come back negative... OR so I thought! My Primary "told me" he was doing a lyme test on me 2.5 years ago and come to find out 2 days ago, he never did it!!!!!! My husband has suspected Lyme for a long time now.. I know it's REALLY hard to diagnose. I'm beyond frustrated!!!!!! I question all doctors now....

They've thought: MS, Neuropathy, chronic epstein barr, etc etc etc etc.......

I have ALWAYS worked out!!!! Since I was 14 (I'm 34). VERY much a fitness gym person. Nowadays, my workouts are almost non-existent [Frown] I have a 6 year old son... I would NEVER have all these symptoms "be in my head" (l I feel some doctors think it is after tests come back negative) and have this affect my son!!!!!! Ever!!! I have no energy for him 50% of the time. It makes me feel horrible... About a year after my symptoms started, a Infectious Disease Dr and neurologist tested me for Lyme and they were both negative.
I need answers!

I have read A LOT about LLMD doctors that specialize in Lyme Disease. It's so controversial though, so it's very hard to find a llmd. I would like to find a LLMD in Florida.....

Thank you!
 
Posted by Lymetoo (Member # 743) on :
 
Welcome!! You may want to copy and paste this info over to Medical Questions where everyone is. They will help you and give you feedback.

I sent you some info on Drs in FL.

The labs used by your neuro and ID doctor are the problem. It's also possible that you had positive bands they are not telling you about.
 
Posted by yellow01 (Member # 40519) on :
 
Thanks so much. I will do that now. I'm still getting to know this website and where to post things [Smile]
 
Posted by hopingandpraying (Member # 9256) on :
 
Check the online state Lyme groups at:
http://health.groups.yahoo.com/group/Floridalyme

Maybe they can help you.

Some more resources for you:
www.floridalymedisease.com
www.floridalyme.org

Direct link for doctor referrals is: https://sites.google.com/site/floridalyme/doctor-referrals

www.lyme-aware.org
www.ilads.org
www.lymediseaseassociation.org
 


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