I just changed insurance to Kaiser Permanente and live just south of san jose CA. I need any and all info on llmds that participate with this insurance...thanks
[ 09-17-2013, 03:15 PM: Message edited by: Robin123 ]
Posted by Robin123 (Member # 9197) on :
Hi - am pming you -
Posted by Judie (Member # 38323) on :
Kaiser Permanente has to follow their guidelines. I'm glad that you got insurance, however keep in mind that there are many accounts of getting screwed over and misdiagnosed from Kaiser, also denying someone has Lyme.
I had to fight with them even over doing some basic tests awhile back. The PCP wouldn't do most of them.
I'll PM you the name of someone outside Kaiser system. You might be able to at least get your meds filled through Kaiser though.
Posted by Keebler (Member # 12673) on :
- Kaiser will not properly assess, test or treat lyme. Don't even whisper it to your doctor there as it can ruin any chance for any other kind of care without judgement and dismissal.
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor - starting with assessment / evaluation.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
Posted by Judie (Member # 38323) on :
Here's a link to yelp reviews about Kaiser in Pleasanton.
"My Aunt went to Kaiser to get tested for Lyme because of all her symptoms and the doctor told her there was no Lyme in California."
"I went to this Pleasanton, for over a year and was misdiagnosed by about 15 doctors. my PCP was a Dr C, and told her that I had strange rashes all over my back from running on a trail.
I had told her that I was feeling strange and since my first symptoms were a muscle flare that I had for months before I got to her, she referred me to physical therapy.
I knew it wasn't going to work, I came back to her and told her my problem was growing worse about two months later.
I had mentioned to her AGAIN, that I thought I had Lyme Disease, and to please check me for it. She REFUSED. She didn't even chart my file about running in the trails while getting the rash, or the fact that I thought I had Lyme Disease.
I sent her over three different emails begging her for the tests. Every time I had a visit with her, she would refer me to some doctor and appear extremely frustrated with me, saying "I can t do anything about your arthritis."
I was pretty amazed. There were many indications that had Lyme Disease, she was uneducated and kept referring me around to the wrong places, like orthopedics and she tried to send me to psychiatry because I was so frustrated with her,
and then finally, at my young age of 28, she said I need to be in "chronic pain management" and that I have a chronic condition - she referred me to rheumatolody and had the rheumatoid doctor diagnose me with "Fibromyagia"
I was sent to the pain clinic, and sat there with people that were all over 60 years old. I knew Dr. C didn't care about finding out what was wrong with me."
**removed name of Dr**
[ 09-19-2013, 09:41 PM: Message edited by: Lymetoo ]
Posted by Robin123 (Member # 9197) on :
I would love to be able to turn that top phrase around and say there's no Kaiser in California.
Posted by Judie (Member # 38323) on :
Agreed. There's no Kaiser or Palo Alto Medical Foundation in California that's helpful with this (PAMF is the other monolith that's saying just 3 weeks of doxycycline and you're cured).
I think the experience that those reviewers had pretty much reflects the attitude at Kaiser.
That doctor was not an LLMD. It was just a PCP at Kaiser.
I didn't know we were suppose to remove all doctor's names. I thought it was only LLMDs. Confused...
Posted by birdie67 (Member # 35994) on :
Unfortunately Kaiser will do nothing. They don't even have the in depth test to check for chronic Lyme Disease. Nor do they have the CD-57 test.
I had Kaiser but applied for independent insurance before I got the Lyme diagnosis.