Please respond if you have any information on the following doctors specifically skilled in treating neuro cognitive effects of Lyme Disease: 1. Dr. K 2. Dr. R 3. Dr. J 4. Dr. M 5. Columbia second opinion clinic I am trying to make the best decision to ensure I start with the right doctor for my needs. Any and all information will be so appreciated.
**edited to remove names of LLMD's per Lymenet rules... You may add the states of these doctors, but not their city location. Thanks.***
[ 02-15-2014, 03:34 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
Do you currently have an LLMD?? I would find a good LLMD first, then approach from the standpoint of an LL neuro if you need one.
1. Have heard some good things. 2. Have heard mixed reviews .. mostly good. 3. Very mixed reviews. 4. Never heard of him. 5. Won't get you anywhere because they don't TREAT.. They only evaluate.
Posted by TF (Member # 14183) on :
LLMD means lyme literate medical doctor.
Posted by TF (Member # 14183) on :
I have heard a lot of bad about #2 and #3.
I never heard of #4.
I have heard that #5 does not treat, just evaluates.
I must say that every person with lyme has neurocognitive effects. Lyme is in the brain very quickly after a bite.
My brain scan showed 2 UBOs (unidentified bright objects) from lyme disease.
So, every lyme doctor is treating patients with neurocognitive symptoms.
My advice is to go to the very best lyme doctor you can afford. There is no group of lyme doctors for those with severe neuro symptoms as neuro symptoms are just a normal part of lyme disease.
Those with major neuro symptoms generally need IV therapy. See this quote from Burrascano:
"INDICATORS FOR PARENTERAL THERAPY
(The following are guidelines only and are not meant to be absolute. It is based on retrospective study of over 600 patients with late Lyme disease.) · Illness for greater than one year · Prior immunosuppressive therapy while infected with Bb. · Major neurological involvement · Active synovitis with high sedimentation rate · Elevated protein or cells in the CSF" (page 21 )
Do a search of Burrascano using the search term "neuro" and you will find every reference to neurological symptoms and what Burrascano says to do about it, including supplements, etc. (Special supplements for neuro symptoms starts on page 29) Just click on Control+f (for "find") to open up the search box when you have the document on your screen.
I got rid of lyme (and all of its neurocognitive effects), babesiosis, and bartonella over 8 1/2 years ago by going to a doctor who followed the Burrascano protocol.
I had stiff neck, bilateral bells palsy, word-finding problems (name and word retrieval), derealization, memory loss, sound sensitivity, trigeminal neuralgia, and extreme muscle weakness of every muscle of my body.
All of these neurological symptoms disappeared with good Burrascano style treatment.
5 of my friends also got rid of their lyme (and one had severe brain fog from 50 years of lyme) by going to doctors who follow Burrascano.
Since I have seen it work over and over again, I recommend only lyme doctors who follow the Burrascano protocol.