Seeking Lyme literate doctor in NC near Raleigh/Durham/Chapel Hill. Hopefully one that accepts insurance (Cigna).
Over the last few years, I've gotten very sick. Developed some autoimmune issues, been diagnosed with a host of "wastebasket" illnesses ; ME/CFS, POTS, fibromyalgia, (ITP) Immune-mediated Thrombocytopenia, Joint Hypermobility Syndrome.
I've lived in many states, pried off many ticks, and realized I should be better evaluated for late stage Lyme.
Your help is much appreciated.
Posted by TF (Member # 14183) on :
Sorry to tell you but once you go south of Washington, D.C. there are really very, very few lyme doctors on the east coast.
And, the excellent ones are all around D.C. and north.
So, people in N.C. have to travel north to get a good doctor.
This is not unusual. Many states don't have any lyme specialists at all. So, at least half of all lyme patients go out of state for their care.
Check with the lyme support groups in you state and nearby states. See Support Groups on the left side of this page. They can also give you information about lyme doctors.
In addition, it is rare that a lyme doctor takes insurance of any kind.
If you are willing to travel to the D.C. area, let me know and I can give you the name of a lyme doctor who can see you quickly. He does not take insurance.
Just click the envelope icon above my post to write to me privately and let me know that you are interested. We do not post lyme doctors' names on the public board.
If you have not yet done so, I suggest you read and STUDY the Burrascano lyme treatment guidelines found here:
When it comes to lyme disease, there is no substitute for an educated patient.
Glad you found LYmeNet, and good for you for asking for a doctor here. You are wise to look into lyme disease. We will help you all we can.
Posted by lacyndora (Member # 44278) on :
Thank you very much, TF. I was afraid of as much; went through a similar process with finding a doc for ME/CFS. The link/info will be very helpful, much appreciated. :-)
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for NC, VA, & MD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this: