My mom was diagnosed a few weeks ago with ALS, but they never tested her for Lyme Disease.
Can you send me some doctors in the area of St. Simons/Savannah, Ga or Jacksonville Florida who might be able to just test her for Lyme Disease?
We just want to make sure she doesn't have Lyme instead of ALS.
Posted by paulainsavannahga (Member # 44664) on :
That is brilliant. I cannot recommend a MD, but you are correct to follow through with testing.
I know a lady in tennessee who also had Lyme, was treated, then she 'got ALS' a couple years later .. really. She was a healthy, vibrant 39 yr old.
It is more likely the Lyme was not eradicated, other people have had ALS then later found actually to have Lyme.
See a LLMD. I NEVER had a CDC positive test and still had Lyme diagnosed by an Infectious disease MD! Tests are not that accurate obviously.
I live in Savannah and I can tell you there are no LLMDs here --
Take care, P.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for FL.
Your dear Mom needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
They are far and few between, unfortunately. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":