Hello all. I'll post the question first so that its the TLDR version and anybody wanting backstory can read further.
Essentially I'm wondering some names and locations of what could be considered a top10 list of LLMDs in the US. And Drs that can actually be seen by patients that is. I know Dr. H is basically impossible to see, and Burascanno and others don't see patients anymore.
I know some people on here have been involved in this community for years beyond years and can help with this.
Non-TLDR version
I am in Florida. The only legit LLMD I could find info about was Dr. C in Tampa. I was mid treatment with him and he retired out of the blue due to health concerns.
I couldnt find another LLMD in Florida and at the time felt I was on the right path and thought I could continue fighting with only herbs. (Mostly Zhang protocol but not ordered via Zhang)
I believe I am relapsing rather quickly lately and heading in the wrong direction and going to be in CA. I posted on this forum about Socal doctors and bumped the thread multiple times and only one user seems to respond to requests about Socal. They are insanely helpful the issue is when I look into these doctors, as expected, the comments found on the net are INSANELY back and forth. SO its hard for me to accept just what one person has heard on here-say cause clearly this one forum-user has not been to all of these Drs. Therefor I wanted more people who had been in-the-know of Doctors in Socal or near, so that I could see which doctors are consistently being mentioned as good around here. That didn't seem to be possible.
I want to be confident when I go to this next doctor that he/she is very good and among the best. I feel that is important for my mental state/health during this whole thing.
Depending on what I can find about these "best lyme doctors" im asking about, and if I keep hearing the same names from multiple knowledgeable people on here, and depending on where it is, I luckily have a job that allows me to travel and I have friends in many cities that I could potentially find something out of state.
Posted by Robin123 (Member # 9197) on :
Hi - you could contact support groups in the areas you're considering for some feedback about the doctors, since S CA folks would be going to them!
Support groups are listed at the left - click on United States, California
We have several "bests" in the state, if you want to discuss with me again.
Posted by Lymetoo (Member # 743) on :
Sadly, most LN members do not come to Seeking a Doctor very often. Even a similar thread in Medical a few weeks ago elicited few responses on who the best LLMD's are.
Florida is in a bind with few LLMD's . . always has been that way.
If you need more names for FL, I do have some.
Posted by stiffyoungman (Member # 40067) on :
I'm going to be in CA most likely. But like I said, considering traveling if I feel more comfortable with another DR
Posted by hopingandpraying (Member # 9256) on :
I think you need to get to a LLMD sooner than later, because you wrote you are rapidly relapsing. You have received a lot of good information. Poster "Robin123" is the one who is very knowledgeable about CA.
When you get the name of a LLMD, write a new post in "Seeking a Doctor" and title it "Need Feedback on Dr. _ (last name initial only) in CA (no cities allowed, per Lymenet rules). You can do the same for any LLMD in any state.