LymeNet Flash: Seeking LLMD in Northern CA AND CT/NY for IV antibiotics

This is topic Seeking LLMD in Northern CA AND CT/NY for IV antibiotics in forum Seeking a Doctor at LymeNet Flash.

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Posted by Jewelfire (Member # 46170) on :

Hi everyone,

I'm looking for aggressive treatment following Dr. B's protocol. Can anyone PM me with the lowdown on the various docs? Looking both in Northern CA (where I am now) and CT/NY, where my family lives.

Thanks so much!

JF

Posted by Lymetoo (Member # 743) on :

Info sent for CT.

Welcome! [Smile]

Posted by Otr87 (Member # 46125) on :

Can you please send me info for ct llmd as. Well

Posted by Robin123 (Member # 9197) on :

Pming you re CA -

Posted by hopingandpraying (Member # 9256) on :

Otr87 - I already sent you info for CT.

Posted by hopingandpraying (Member # 9256) on :

Jewelfire - Welcome to Lymenet! Sent you a PM with some suggestions.

Poster "Robin123" from CA already gave you info for CA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/CaliforniaLyme/info

https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.com/california.html

www.lyme-aware.com/connecticut.html

www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/California/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the new book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com