LymeNet Flash: PA Doctor Needed

This is topic PA Doctor Needed in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/26027

Posted by jschwamb (Member # 46386) on :

I am looking for a doctor to help diagnose my husband in the Mechanicsburg, Harrisburg, Carlisle, Hershey, York area. Two Lyme tests done by his PCP have come back negative, but we think Lyme is the culprit of all of his symptoms. Doctor has him on doxy for only 2 more days (10 days total), but is reluctant to extend the prescription with the negative tests.

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for PA & MD.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
www.lyme-aware.org/pennsylvania.html
www.lymepa.org [Note: they are very knowledgeable]

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posted by TF (Member # 14183) on :

I know a good lyme specialist who can see him in a few days. He is in Maryland, near Washington, D.C.

Let me know if you want the name.

I would say he is better than the lyme doctors in your area, based on patient reports I have gotten. Also, he will do telephone or Skype appointments after the first in-person appointment. So, you will not have to travel to the D.C. area very much at all.

You likely will find very long wait times for the good lyme doctors nearer to you.

There are some in Maryland that are closer to you, but I do not recommend them.

Welcome to LymeNet! We will help you here all we can.

Posted by jschwamb (Member # 46386) on :

Yes, please. We would appreciate the name of the Maryland doctor. Thanks!

Posted by TF (Member # 14183) on :

I sent you the name and lots of information.

Posted by Andie333 (Member # 7370) on :

I live in PA and go to a NY doctor.