LymeNet Flash: Looking for LLMD in Missouri

This is topic Looking for LLMD in Missouri in forum Seeking a Doctor at LymeNet Flash.

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Posted by newa71 (Member # 46623) on :

I'm looking for an LLMD in the Kansas City area in order to test for Lyme.

TIA!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for MO.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MissouriLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/missouri.html

http://www.lymenet.org/SupportGroups/UnitedStates/Missouri/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posted by Lymetoo (Member # 743) on :

I sent you some info .. You may want to consider making the apptm with the LLMD but also see if you can get your PCP to do the testing while you wait.

PM if you need more help on that.