This is topic NJ/NY Doctor needed in forum Seeking a Doctor at LymeNet Flash.


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Posted by amyrutledge443 (Member # 46650) on :
 
I am a 33 year old female i have Babesia Bartonella and Lyme that i know of so far.

I was bit 12 years ago had the bullseye rash treated for 2 weeks of antibiotics then told later i never had lyme. I went all these years untreated.

for the last 2 years I have been on a slew of antibiotics. for the last 2 months and still curently im on mepron, rifampin, and azythromycin.

I feel like this medicine will kill me somedays. Im only 105 and 5'1. I have severe anxiety and stabbing chest pains and palpitations with numbness in my arms since i started. im nervous about my current doctor and unsure about his protocol and think i should get a second opinion.

My symptoms are brain fog, anxiety, insomnia, mood swings, debilitating depression, heart palpitations, disorientation, shortness of breathe, night sweats, joint pain, fever chills, memory loss.

Any help i can get I would appreciate so very much. Thank you
 
Posted by hopingandpraying (Member # 9256) on :
 
Hi! Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-jersey.html

www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - you should not use your real name on Lymenet because this is a public forum with all sorts of people on it. Read the following link which explains why:

"Please Do Not Post Your Real Name"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

To remove your name from the signature line, click on "My Profile" under LymeNet Flash, then "Edit Profile" on the left side. Scroll down to "Profile Fields" where it says "Signature". Make your change, then click "Update Profile".

You will have to contact the moderators to ask how to change your posting name.
 


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