As per the username, I'm new to CT... and my spouse has been mysteriously ill for several years.
We managed to find a doctor in our previous state who ran a (Mayo Clinic) Western blot, which was severely negative for any Lyme-specific antigens. Even so, everyone who sees my spouse says that Lyme is the first thing they think of for all her symptoms (neuro/cognitive, chronic pain/itching/paresthesia, GI... long list) - and she grew up in a epidemic center for Lyme.
We'd like to find an LLMD (not a naturopath) who we can trust to RULE OUT Lyme if not present (as near as that's possible), and diagnose if it is. (No point treating for the wrong thing!)
ILADS gave us a list that only included one MD, and her contact info was out of date.
Any recommendations?
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for CT.
Your wife needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
She needs to be tested through IGeneX Labs in Palo Alto, CA. We say "Hold the Mayo" here on Lymenet!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list as well as questions about insurance. Patients have been able to get in sooner by doing this.