This is topic Seeking LLMS Upstate NY or NYC in forum Seeking a Doctor at LymeNet Flash.


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Posted by Mrs. Scrappy (Member # 46794) on :
 
Hi. Live in Sullivan County but can drive to NYC, eastern PA, or CT.

Many symptoms; vertigo, memory problems, heart palpitations, sleep trouble.
Now have unbelievable muscle and joint pain.

My MD is giving me 30 days of doxycycline and suggests that I find a Lyme specialist. She feels I have Lyme based on past and more recent tick bites.

Cardiologist and neurologist both agree with her.

A few years back this list helped me find an amazing Dr. in Boston for my husband. Last saw him on Cape. But that is too far to drive for me now.

Any suggestions closer to my home would be appreciated.
Thanks and be well.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com
 
Posted by Bitten in Bergen (Member # 34067) on :
 
pm sent.
 


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