This is topic Need a LLMD in Sarastoa, FL or anywhere! in forum Seeking a Doctor at LymeNet Flash.


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Posted by JPS2 (Member # 47031) on :
 
Hello,

After a year of incorrect diagnosis my wife has been diagnosed with lyme. Also, we have myself and a 16 month old daughter who will now be doing blood work. Please advise on LLMD!

Thanks
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent FL.

Your wife needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/FloridaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):
www.lyme-aware.org/florida.html

http://www.lymenet.org/SupportGroups/UnitedStates/Florida/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com
 
Posted by JPS2 (Member # 47031) on :
 
Thank You for the quick response. All help is greatly appreciated!
 
Posted by JPS2 (Member # 47031) on :
 
Anyone know of this fabled Sarasota Wellness Center I have seen mention of here that offers Rife therapy? Name or phone #
 
Posted by Tincup (Member # 5829) on :
 
www.FloridaLyme.org has a Doctor Referral page. You can find the page listed in the left hand menu. Perhaps your center is listed there? Good luck!
 


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