I am seeking a Lyme Dr. I have been diagnosed and part way through 28 day antibiotic treatment through PICC line. I'm afraid it won't be enough and would like to talk to a Dr. who specializes in Lyme.
[ 12-04-2015, 01:18 AM: Message edited by: Robin123 ]
Posted by hopingandpraying (Member # 9256) on :
Where are you looking specifically? In PA or can you travel?
You should put the state in your title. Click the pencil/paper icon, make your change, then click "Edit Post".
Posted by TF (Member # 14183) on :
You are very wise. Generally, the 28 day treatment using just ONE antibiotic, even though by PICC line will not do the trick.
Instead, if you go to a doctor who specializes in lyme (meaning his practice is nearly all lyme patients), you have a much better chance of getting over this disease.
Sorry to say, but to get a very good lyme specialist, I recommend you travel to the D.C. area. This doc can see you quickly. And he will do telephone or Skype appointments so that you only have to come in person every 3 months.
Folks from all over are going to him and like him.
If you want the name, prices, etc. just let me know. In the meantime, it would be well worth your while to read the Burrascano Lyme Treatment Guidelines found here:
Also know that lyme specialists do NOT take insurance so you will be paying out of pocket and then filing a claim yourself for some reimbursement for the tests and doctor visit. It isn't cheap.
There are a few lyme doctors in central Pa. But many from your area come to the Maryland area to be tested and treated.
Also, you can contact the lyme support groups in your area. See Support Groups on the left side of the page. You can ask them for names of doctors who are curing folks of lyme diease.
You see, many doctors treat lyme disease, but very few know enough to get rid of it for a person.
I and at least 5 of my friends got rid of lyme by going to a doctor who followed the Burrascano protocol. It is now 10 1/2 years since I completed my treatment (for lyme, babesiosis, and bartonella) and I am still symptom-free, enjoying my life.
Here are a few points from Dr. B's guidelines:
You must attack both the regular and cyst (or other) form of lyme simultaneously--requires at least 2 different antibiotics taken together to do so.
You must test the patient for all co-infections and other physical ailments (thyroid, etc.) and treat everything the person has.
You must treat all co-infections the patient has (including babesiosis, bartonella, ehrlichia, mycoplasma, etc.) or the patient will not get well.
You must use Igenex for most of these tests--they are a tick-borne disease speciality lab in Calif.
You must use very high doses of antibiotics to kill the diseases (batericidal doses).
You must give the patient supplements, probiotics, herbs such as artimesinin if babesiosis is suspected, and require adherence to rules such as low carb diet, no alcohol, no smoking, rest, and exercise as the patient is able to do it.
You must treat at least 2 months after all symptoms have disappeared (if sick at least 1 year).
These are just a few of the important points you will see in the guidelines. If possible, you want a doc who does EVERYTHING Burrascano says to do. He treated lyme for over 25 years, and compiled what he learned so that other docs could benefit from it. He was the most successful lyme doctor on the planet. They came from every country in the world to be treated by him.
So, read and STUDY this document. Then, you will have an education on this disease. Then, you can evauate any doctor you go to for help. You will know when to hold 'em and know when to fold 'em.
Let me know if you want the name of the doc I recommend.
Posted by Ann-Ohio (Member # 44364) on :
If you put your state in the subject line when you post here, you will get more response.
I hope you find the help you need. Ann - OH
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for MD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":