This is topic New York Doctor needed in forum Seeking a Doctor at LymeNet Flash.


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Posted by rargentine (Member # 47186) on :
 
I am looking for a lyme doctor/Neurologist for my wife. We live in the Syracuse area but I am willing to get her to anybody that may be able to help. 3 years of different and wrong diagnosis so far. After much research on Lyme I feel there is a good possibility this may be it.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent with some suggestions.

There is a LL Neurologist in CT, but he does not treat Lyme only the neurological problems resulting from it. Your wife has to be treated for Lyme and co-infections in order to address the neurological problems.

Your wife needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com
 
Posted by petterpan (Member # 47637) on :
 
Dr. F

(editing out doctor's last name per LN rules)

[ 03-08-2016, 06:11 PM: Message edited by: Robin123 ]
 


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