This is topic Seeking a Lyme Literate Doctor in East Stroudsburg PA in forum Seeking a Doctor at LymeNet Flash.


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Posted by Chahlie (Member # 47195) on :
 
I was diagnosed with Lyme Disease a little over a year ago. I believe that I had been misdiagnosed for many years prior to that. Unfortunately the doctor who diagnosed me believes that a few weeks of doxycycline handles everything. I've found that to not be true. Please assist me with finding a Lyme Literate Doctor in my area that will accept my medical coverage. I live in Marshalls Creek PA which is geographically close to East Stroudsburg PA. I have AmeriHealth Caritas Northeast for medical coverage. I am also an Honorably Discharged U S Coast Guard Veteran. [email protected] Thank You and Be Blessed One and All
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this. Also ask about your insurance.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/pennsylvania.html
www.lymepa.org *Note: they are very knowledgeable

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - we know you are new to this site so here are some things you should know:

Please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

We correspond by private messages (PMs) not e-mail. This is a public forum with all sorts of people on it. Do not write your e-mail address in your post.

In order to make any changes, click the pencil/paper icon, make the changes, then click "Edit Post".
 


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