LymeNet Flash: Seeking a doctor in Portland, Oregon

This is topic Seeking a doctor in Portland, Oregon in forum Seeking a Doctor at LymeNet Flash.

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Posted by klynnae (Member # 45685) on :

Looking for a lyme literate doctor in the Portland, Oregon area for my 12 year old son who was diagnosed last April. His current MD/ND is closing his practice.

Posted by Keebler (Member # 12673) on :

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www.oregonlyme.com/about.html

Oregon Lyme Disease Network / Support Group contacts

https://www.facebook.com/groups/869280209779701/

Their Facebook page

http://lyme.kaiserpapers.org/oregon.html

Background: Lyme Disease in Oregon

The Kaiser Papers – not by or from Kaiser Insurance but for background regarding lack of lyme assessment / treatment in general, regardless of one’s insurance coverage.
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Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for WA.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Here is a link for you to read more about Oregon & LLMDs:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025982;p=0#000000

Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/OregonLyme/info

Maybe they can help.

Some more resources (including Support Group info):
www.lyme-aware.org/oregon.html

http://www.lymenet.org/SupportGroups/UnitedStates/Oregon/

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com