I'm in Fairhope, so a Lyme literate doctor in Baldwin county would be great. But I'm willing to travel an hour or two within Alabama (FL won't work - my supplemental insurance is BC/BS of AL).
Backstory: I was diagnosed with Fibromyalgia many years ago, but the exhaustion I continue to experience is way beyond 'fibro fatigue'. My regular doctor has done all he can (all the standard tests have come back normal) and now wants me to see my rheumatologist (again). I'll make the appointment, but I can't see that he can help. I would appreciate any recommendations and/or suggestions.
Posted by Lymetoo (Member # 743) on :
A rheumatologist is of no help when it comes to testing or treating Lyme.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet!
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know of any in AL.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.