This is topic LLMD in New York in forum Seeking a Doctor at LymeNet Flash.


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Posted by TimmyG (Member # 47522) on :
 
Hey guys,
I'm looking for an LLMD for New York State, or New Jersey.
I have late stage LYmes, and have been treated with doxycycline, but I don't feel any better. Every doctor I talk to tells me I'm crazy and there is no way I still have Lyme.
Any help is sincerely appreciated.
 
Posted by me (Member # 45475) on :
 
Are you able to travel to MD? If so, there is a good LLMD there that can see you relatively soon, which is quite rare.
 
Posted by TimmyG (Member # 47522) on :
 
It's possible, but I want to see if there is anything closer to home first. I'd certainly take the name.
 
Posted by me (Member # 45475) on :
 
Sending you a private message.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
 
Posted by Bitten in Bergen (Member # 34067) on :
 
pm sent.
 
Posted by TimmyG (Member # 47522) on :
 
Thanks all!
 
Posted by petterpan (Member # 47637) on :
 
Dr. F - She is a neurologist -

(editing out doctor's name per LN rules, sending a PM)

[ 03-08-2016, 06:18 PM: Message edited by: Robin123 ]
 


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