This is topic Dr. in NJ in forum Seeking a Doctor at LymeNet Flash.


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Posted by babsmom (Member # 47344) on :
 
Hi, looking for a doctor who specialiazes in kids. my son is 12 and has funky labs. We went to Dr. J in CT want to learn more about ppls experience as well as maybe switch to someone closer if they are as good.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet!

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. He needs to go where they are.

Many patients go out-of-state to seek treatment from a LLMD. Dr. J in CT has helped thousands of children get better.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 02:28 PM: Message edited by: hopingandpraying ]
 


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