LymeNet Flash: LLMD-NEUROLOGIST Philadelphia area needed

This is topic LLMD-NEUROLOGIST Philadelphia area needed in forum Seeking a Doctor at LymeNet Flash.

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Posted by WendyHD (Member # 47571) on :

I am looking for a neurologist that is at least sympathetic to help me with my disabling neuro symptoms including memory loss, seizures, tremors, losing words, getting lost in familiar places, etc. I am in the NE suburb of Philly in Lower Bucks County. I can no longer drive so someone nearby is a must. Thank you!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet!

I don't know of any LL Neurologists in PA, and only one in CT. Are you under the care of a Lyme-Literate doctor now?

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.lymepa.org [Note: they are very knowledgeable]

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 02:22 PM: Message edited by: hopingandpraying ]