This is topic Seeking LLMD in Boston area in forum Seeking a Doctor at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/26812

Posted by eng (Member # 47705) on :
 
I am over 18 years old and located in the Boston area. I removed a deer tick on March 12. My PCP wanted a wait and see approach and my second opinion at a walk in clinic tested the tick and found it positive for lyme. Although I have no symptoms they are suggesting 200mg/day of doxycycline. I am wondering if an LLMD would recommend same course.
 
Posted by Tincup (Member # 5829) on :
 
So sorry you are having problems like this. To find out what Lyme treating doctors would do, go to this site and review the latest treatment protocol. It can also be printed out - one page handout- so you can take it to the doctor with you.

www.TreatTheBite.com

Hope all works out well for you!
 
Posted by eng (Member # 47705) on :
 
Hello and thank you. I will print this out and take with me. Will I by chance get a recommendation for an LLMD? Also, it reads in the report that doxcycycline is recommended but I am hearing that this Rx alone is a potential danger as it could leas to chronic Lyme. This is why I am wanting to see an LLMD. I'm so confused. Thanks again for your help.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT & NH.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.

[ 04-25-2016, 03:39 PM: Message edited by: hopingandpraying ]
 
Posted by Tincup (Member # 5829) on :
 
Those who treat early on like you are doing don't have as much of a problem as those who aren't treated for a year or more. You are in the safer zone, which is wonderful.

Yes, Lyme can still be there after treatment with doxy, but that is the same if it is treated with a combo of antibiotics or anything else. There is no "for sure" cure. It doesn't exist.

That's why I shared the experts recommendations. I doubt an experienced Lyme doctor would treat differently than what is on that handout in your case. It's up to you if you want to spend money to find out.

I would feel VERY good treating as early as you are doing. Very good.

If you'd like a list of Lyme treating health care professionals please feel free to email me (I don't do PM's). Will share a list with you.

[email protected]
 
Posted by Susanweed (Member # 47823) on :
 
Someone please direct me to any LLMD in Boston. I have Bartellona Neurolyme disease.
 
Posted by hopingandpraying (Member # 9256) on :
 
Susanweed - Welcome to Lymenet!

You should write a new post instead of adding on to an existing one. That way, more people will see it and respond, because most don't re-read old posts.

PM sent for CT & NH.
 
Posted by Nancy2 (Member # 95) on :
 
PM sent to Susan!
 


Powered by UBB.classic™ 6.7.3