This is topic NJ LLMD Needed! in forum Seeking a Doctor at LymeNet Flash.


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Posted by Teamjdubb (Member # 48001) on :
 
Lf LLMD in NJ. Preferably Central NJ but can travel.
 
Posted by TF (Member # 14183) on :
 
Based on many patient reports I have received, I don't recommend any of the lyme doctors they have in New Jersey.

Some really rip off the patients. I have horror stories.

So, are you willing to travel, say to the D.C. area? Let me know and I will give you the name of who I recommend. He is better than the lyme specialists they have in Philly.

If you want a chance to actually get rid of this disease, you need to go to the best lyme doctor you can afford.

The good ones are few and far between. And, they cost money and don't take insurance.

At least half of all lyme patients go out of state for their care and many fly.

Let me know.
 
Posted by TF (Member # 14183) on :
 
Here is an updated link to the Burrascano Lyme Treatment Guidelines:

http://www.lymenet.org/BurrGuide200810.pdf
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MD & PA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/
 
Posted by Tincup (Member # 5829) on :
 
You can go to www.NewJerseyLyme.org and look under doctor referrals. There is a site with instructions on how to find a local doctor- alternative and/or traditional- along with names and contact information.

You may also want to go to www.TreatTheBite.com where you'll find a one page print out with recommendations you can take to any doctor to be treated if you just got a tick bite.

If you'd like to have the tick tested for several diseases there is a FREE (saves hundreds of dollars) place to do it right now.

Here is the link to find out how.
https://sites.google.com/site/marylandlyme/ticks/free-tick-testing

Good luck!
 
Posted by jenni-bunnies (Member # 34506) on :
 
Hi, I have an acquaintance in Ewing, NJ who was just diagnosed with Lyme - he has been sick for quite awhile so is in a fairly advanced stage.

Of course he is seeing a regular duck and is told he will be fine after 30 days doxy. He is really sick, and alone - no one to help get him very far to a good LLMD.

Does anyone know what LLMD - or someone even close to LL, in that area (near Trenton) who he should see?

Thanks!

Jenni
 
Posted by hopingandpraying (Member # 9256) on :
 
jenni-bunnies - I was going to recommend you write a new post, because most people don't re-read old ones, but I see you have done just that.

PM sent for PA & MD.
 


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