LymeNet Flash: NEED LLMD IN MA

This is topic NEED LLMD IN MA in forum Seeking a Doctor at LymeNet Flash.

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Posted by aquinnah (Member # 24128) on :

HELLO
Just got official word - high titer of bart. Need LLMD as mine retired last May.

I've had lyme since 1989 but wasn't diagnosed until 2001(!). Been up and down since....In 2013, I flared up again (and also noticed a tic in my bed!)...I was treated again b4 my LLMD retired and this was the longest I tolerated treatment (oral). I did get well but then a month later - pain returned. I haven't bounced back but have only began detoxing past couple months. TODAY I was informed of exposure/high titer for BART. Please advise...I am so sick...and tired...My liver has high enzymes now too AND I'm new to hypothyroidism...Some days I can barely walk...Blurry eyes..joint muscle pain. hair loss..dizzy...ETC ETC...HELP!!!! [confused]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT & NH.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posted by Nancy2 (Member # 95) on :

PM Sent!

Posted by Neil (Member # 14659) on :

We had the same specialist, Aquinnah. I was with him for many years. Such a loss. And I'm a wreck.

Diagnosis was clinical with a small bit of support from test results. And he accepted my insurance.

I've just started, but I will be happy to share research and recommendations with you.. please do the same with me.

Thanks.