LymeNet Flash: Seeking LLMD - Cape Cod, MA, RI Areas

This is topic Seeking LLMD - Cape Cod, MA, RI Areas in forum Seeking a Doctor at LymeNet Flash.

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Posted by Neil (Member # 14659) on :

Former patient of Doctor D's in need of a new LLMD. I am on Cape Cod, but I am able to travel to anywhere in MA or RI.

The original diagnosis was clinical, and I hope to find a physician who accepts MA ConnectorCare plans (Neighborhood Health).

Thanks in advance.

[ 06-08-2016, 09:00 PM: Message edited by: Neil ]

Posted by hopingandpraying (Member # 9256) on :

PM sent with some suggestions.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Posted by Nancy2 (Member # 95) on :

PM Sent!

Posted by Neil (Member # 14659) on :

Thank you both.

Nancy2, I just tried sending a PM, but your box is full. I am from that area, and I visit my mother weekly just 2 towns away. I have family in that town, even. AND I had already just started looking into her! No, not far at all!