Hello, I am looking for a Lyme Literate Naturopath in Massachusetts, or anywhere in New England I guess. I live in Central MA and really need help.
I've been sick most of my life, and more recently have been in the hospital 3 times this past year alone with an episode of seizure and constant vomitting (none of the anti-nausea meds work, my body HATES drugs), and was on crutches for 8 months because of an unexplained injury/episode to my right foot (they called in Chronic Regional Pain Syndrome, but then said it wasnt, so what is it?!)
The doctors keep saying it's all in my head, because apparently I WANT to be sick and have my whole life turned upside down, because yeah...thats fun.
Last night I noticed red blood spots on the bottom of my foot and I can't take this anymore, I need someone who knows what they are doing to help me!!!!! I went to an LLMD in MA, but insurance doesn't cover him, so no antibiotics for me (also not sure I want to take them for 8 months with all the GI issues i already have), and he's extremely expensive for just one visit. He feels I may have Lyme and probably Bartonella, but I also have symptoms of Babesia. Someone please help me!
[ 06-10-2016, 05:22 PM: Message edited by: PantsFace ]
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for NH.
I'm so sorry you are going through this. You need to be evaluated and treated by a Lyme-literate doctor (LLMD).
Non LLMDs have no clue about this horrible disease or its complex treatment! "It's all in your head!" is a very common explanation when they can figure out what's wrong.
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posted by Nancy2 (Member # 95) on :
PM Sent!
Posted by PantsFace (Member # 48054) on :
hopingandpraying, edited. Sorry about that. Thanks to both of you, I will be checking these sites out.
I started taking OLE 500mg 1x/d last week (given to me by a nutritionist/kinesioligist), and noticed the spots 6-7 days into taking it.
I upped the dose to 2x/d yesterday and have noticed 5 new spots on my belly in just 1 day!
I will make a new post to see if anyone has used OLE and had anything similar to this.
Posted by hopingandpraying (Member # 9256) on :
You're very welcome.
Make sure you post in "Medical Questions" regarding the OLE & spots.
![[Frown]](frown.gif)