This is topic New member seeking dr in mad for 17 year old in forum Seeking a Doctor at LymeNet Flash.


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Posted by Operations86 (Member # 48302) on :
 
My daughter (17 year old) has just come down with Lyme disease symptoms and is starting a course of antibiotics. She has intermittent fever, aches, and a classic bulls eye rash. I am looking for the best doctor I can find in the DC MD metro area. (Bethesda, Gaithersburg home)

We're new to this and are trying to get started right. Any advice or personal referrals on specific doctors would be very much appreciated. Thanks.
 
Posted by me (Member # 45475) on :
 
So sorry to hear you are going through this. Sent you a private message with info. Welcome to Lymenet.
 
Posted by TF (Member # 14183) on :
 
Welcome to LymeNet! I sent you the name of a good doc who can see her immediately, and he is not far from you at all.

We will help you here as much as we can.

Because you are catching this early and going to a good doc, she should do well.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MD.

The bull's-eye rash is definitive for Lyme. Your dear daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. She needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MarylandLyme/info

https://groups.yahoo.com/neo/groups/DCLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.natcaplyme.org

http://www.lymenet.org/SupportGroups/UnitedStates/Maryland/

http://www.lymenet.org/SupportGroups/UnitedStates/DistrictOfColombia/

The top LLMD, Dr.H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

[ 07-25-2016, 05:07 PM: Message edited by: hopingandpraying ]
 
Posted by yancync (Member # 46999) on :
 
I sent you a PM about who our 14 yo DS sees. He has late stage Lyme and various co-infections.
 
Posted by Tincup (Member # 5829) on :
 
If you go to www.MarylandLyme.org and look under "Doctor Referrals" (menu to your left) you will find a site with doctor's contact information for the USA, including information on alternative doctors, labs and support groups.

Hope that helps!
 


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