This is topic Northwest Pa Doctor needed in forum Seeking a Doctor at LymeNet Flash.


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Posted by Pa Lymewife (Member # 48304) on :
 
I'm looking for aLLMD in northwest Pa for my husband. He contracted Lyme in 2007, but not diagnosed until 2008.
He was treated with IV antibiotics, but continues with nerve pain, memory problems and confusion.
Docs we've seen in past only say, " it will get better, or it won't"
Help please !
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for OH.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lymepa.org

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

[ 07-25-2016, 04:55 PM: Message edited by: hopingandpraying ]
 
Posted by TF (Member # 14183) on :
 
I sent you what I have.
 
Posted by Tincup (Member # 5829) on :
 
If you go to www.MarylandLyme.org and look under "Doctor Referrals" (menu to your left) you will find a site with doctor's contact information for the USA, including information on alternative doctors, labs and support groups.

Hope that helps!
 
Posted by LisaK (Member # 41384) on :
 
I will send you PM.

I live maybe near you and I ended up getting my best help from an alternative dr treating with herbs and supplements.
 
Posted by LisaK (Member # 41384) on :
 
sorry, I thought your post said northeast PA. good luck to you!
 


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