LymeNet Flash: NEW YORK -- FINGER LAKES REGION / ROCH

This is topic NEW YORK -- FINGER LAKES REGION / ROCH in forum Seeking a Doctor at LymeNet Flash.

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Posted by Orange (Member # 48466) on :

Looking for LLMD

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by the top LLMD, Dr. H titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by Tincup (Member # 5829) on :

Hey Orange!

Orange you glad Lyme Net is here to help you?

[lol]

If you go to www.MarylandLyme.org you will see a Lyme treating Doctor Referral listing on the menu to your left.

That will give you contact information for traditional, natural and other kinds of health care providers from NY and all states that have them.

Hope you find someone to help you! Good luck!

Posted by jmaloney (Member # 48279) on :

Did you find one? I'm also looking for one but would like to have a recommendation from personal experience, not just a list.