LymeNet Flash: Lyme Doctor in Boston area?

This is topic Lyme Doctor in Boston area? in forum Seeking a Doctor at LymeNet Flash.

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Posted by WorriedinBoston (Member # 48582) on :

I was diagnosed with Lyme this summer and had one round of antibiotics, but now my symptoms are coming back. I think that I may need to see a LLMD in the Boston area. Can you all give me some suggestions?

Posted by Nancy2 (Member # 95) on :

PM Sent!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT & NH.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by Tincup (Member # 5829) on :

Hey Worried,

If you go to www.VirginiaLyme.org you will see a "doctor referral" page on the menu to your left.

There you can find names and contact information on Lyme treating professionals in all states that have them.

Good luck!

Posted by LilaLee* (Member # 43649) on :

I have a very ill friend also looking for Lyme Doc in Boston area; would you please pm that name (above)?
thanks:)

Posted by Nancy2 (Member # 95) on :

PM Sent to LilaLee!

Posted by LilaLee* (Member # 43649) on :

thanks very much:)