This is topic Seeking NY, MD, CT lyme literate dr in forum Seeking a Doctor at LymeNet Flash.


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Posted by Mjs (Member # 48612) on :
 
We are seeking a lyme literate dr in new york connecticut maryland area. We are in the very initial phase and have yet to be diagnosed.


We are facing so many obstacles to even get tested. Any help or direction is greatly appreciated as the symptoms are getting worse by the minute.

[ 08-23-2016, 11:17 AM: Message edited by: Mjs ]
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr.H, has written a book titled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
 
Posted by Tincup (Member # 5829) on :
 
Greetings!

www.TreatTheBite.com

Might want to try printing out the one page treatment guidelines from the site above and taking them with you to a local doctor. If they see them, and they know YOU know, they are more likely to treat.

If you need anything further....

If you go to www.MarylandLyme.org you will see a "doctor referral" page on the menu to your left.

There you can find names and contact information on Lyme treating professionals in all states that have them.

Good luck!
 


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