My wife and I are considering starting a family but want to make sure we do/consider what is best
for her and the baby. She went untreated for many years (the usual spectrum of misdiagnosis and treatment)
before finding a LLMD who treated her "correctly" for the lyme and co-infections.
We still have our battles but
overall she is doing quite well. I have seen reference to Dr Js protocol but have been unable
to locate it. If anyone could point me in the right direction that would be most appreciated.
Also, if anyone has suggestions on LLMD doctors in the northeast that would be appreciated as well.
Our doctor is a 6 hour drive away!
Thank you and God bless
[ 08-31-2016, 10:45 PM: Message edited by: Robin123 ]
Posted by Keebler (Member # 12673) on :
- booo,
Great news that you are both at a point to consider starting a family. Glad she is doing quite well, overall.
Specific LLMDs names, I hope others can PM to you. You could also call the office of Dr. J for suggestions closer to you - someone he would trust, of course. I hear there is no one like him yet I'm sure he has some suggestions and we hope there will be some who will follow in his strong shoes.
Children's Lyme Disease Network -
Posted by Keebler (Member # 12673) on :
- As it happens, I just happened to be reading about IODINE, for my own study notes . . . and a particular phrase popped up that may be very good for you both to see:
. . . * There’s a correlation between reduced iodine and lower mental IQ.
A developing fetus is particularly susceptible to brain damage if the pregnant mother is severely iodine deficient, so much so that there are initiatives all over the world to fortify pregnant and lactating mothers with iodine to ensure healthy brain development.
According to Dr. David Brownstein, author Iodine: Why You Need It, Why You Can’t Live Without It,
*** the amount of iodine in prenatal supplements is woefully deficient and what he calls “a public health disaster.” ***
The right amount of iodine is absolutely crucial to a pregnant or lactating mother because too much (as well as too little) will lead to hypothyroidism. Iodine has a very “narrow therapeutic index.”
I have many physicians reading this so I will now post the conclusion from April 2015, Journal of Clinical Endocrinology and Metabolism, where researchers evaluated over 7,000 women: . . . .
Book: Iodine: Why You Need It, Why You Can’t Live Without It
By Dr. David Brownstein -
[ 08-31-2016, 07:13 PM: Message edited by: Keebler ]
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for CT & MD.
Your wife needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Dr. J, the top LL Pediatrician, has put together a protocol for pregnant women with Lyme which can be followed with your own doctor. Call his office (sent you contact info) to get more information. Many women who followed it have gone on to have healthy babies.
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posted by booolyme (Member # 43446) on :