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Posted by daughterhasit10years (Member # 48805) on :
 
My daughter is in need of a doctor to treat her chronic lyme. She has been on a regimen of antibiotics for 2.5 years now, due to the length of time it took for diagnosis and she has parasites as well. Her doctor is now too far for travel and we hope there is someone more local to continue her treatment.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for ME.

Your dear daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in to sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/MaineLyme/info

Maybe they can help.

Some more resources (including Support Groups info):

http://whatislyme.com/lyme-in-maine/

http://www.lymenet.org/SupportGroups/UnitedStates/Maine/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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